Today, I woke up ready to play with my toys. I’m two now and sleep in a big girl's bed in my sister’s room. I love being big like the other girls.
When I was playing, my mom had some friends come visit. My tummy started to hurt! I laid down on mommy’s bed and started to cry. Mommy called my daddy on the phone. I heard them say, “Hospital,” but I don’t know what that means.
When Daddy got home, I got to go on a car ride with him and Mommy.
We went to see the doctor, but they sent us to a big building across the street.
Mommy talked to the lady at the desk, and I heard them say, “Xray”, but what is that?
Daddy and I went into a little room where he laid me on a cold table for a picture of my belly. I was so glad Daddy could stand beside me.
As soon as they finished, I was ready to go home. Instead, a lady came and told us to sit and watch cartoons in the waiting room. These cartoons were not the ones I liked! Wait, they are calling my name from that desk at the front of the room. I don’t know them, but my mommy went to ask what they wanted. Maybe we can go home now?
No, instead, they are taking me into another little room. The nurse ask me lots of questions, but I am not going to answer them! Mommy helps by telling them my name and that my tummy hurts. The nurse lady puts a strange light on my finger that looks red. This is scary! I start to cry. She put a pointy thing in my ear, then wrapped something around my arm—It was squeezing me so tight! They want me to stand on that big metal thing and weigh me.
Why can’t I go home?
We are moving again, down the hall past a lot of doors into a tiny room with a bed. Daddy lays me down on it, but I am not going to sleep. Why are we here?
Oh no, here comes that lady nurse again. She brought a man with her. Who is he? He is asking Mommy lots of questions. Mommy is shaking her head as they look through all the cabinets. What are they getting out?
Wait, they are taking my diaper off. I am gonna kick and scream… I don’t like this!! Why are Mommy and Daddy helping them? They put some funny-looking medicine where I don’t want it. My tummy hurts worse! I need to dirty my diaper, but they are making me sit on a funny blue sheet of paper. Yuck! I made a huge mess. Mommy and the nurse lady are using baby wipes to clean me up.
That doctor man comes back saying they are going to do a lab. I wonder what that means?
He also feels of my tummy. He pushes down hard, and it hurts again.
The nurse lady gets a shiny thing and comes for my arm. Mommy and Daddy are holding me down again. This is so scary! “OWIE!!!!!” that lady poked my arm with that thing. I don’t understand what they are doing to me. Why is everyone hurting me, and why do Mommy and Daddy keep helping them?
I’m so very tired. As I lay here and cry, my eyes start growing heavy. I haven’t stayed up this late in a long time. “Daddy, can we please go home?”
****This is written from the perspective of Amelia “Millie” as a two-year-old the night we took her to the hospital for the first time. She would go on to be diagnosed with stage 4 Neuroblastoma just two days later. The diagnosis was constipation that night until the lab work came back that her liver enzymes were elevated. A referral was then made for us to go to OU Children’s Hospital and to see a liver specialist. They were not able to see anything concerning but sent us for more lab work and an abdominal ultrasound. We left the hospital that day after hearing our baby’s abdomen was filled with cancer.
We buried her in July 2020**** {Millie's Voice}
Can you only imagine what these babies think when everyone they know and even people they don’t know are given permission to look at their bodies, touch them, and often inflict (necessary treatment) pain?
Each procedure they endure brings more trauma.
Please help spread awareness for the sake of the children.
~In Honor of Millie Mount~
~forever 3~
……….︵‿︵‿୨☆୧‿︵‿︵………
☆｡･: :･ﾟ★,｡･::･ﾟ☆ ｡･:*:･ﾟ★
I still believe in Millie’s Miracle
☆｡･:*:･ﾟ Hebrews 11:1 ｡･:*:･ﾟ☆
……….︵‿︵‿୨☆୧‿︵‿︵………
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• 𝗠𝗶𝗹𝗹𝗶𝗲 𝗙𝗶𝗻𝗱𝘀 𝗛𝗲𝗿 𝗠𝗶𝗿𝗮𝗰𝗹𝗲 – The children’s picture book
• 𝐄𝐦𝐛𝐫𝐚𝐜𝐢𝐧𝐠 𝐀 𝐌𝐢𝐫𝐚𝐜𝐥𝐞: 𝟐𝟏 𝐃𝐚𝐲𝐬 𝐭𝐨 𝐀𝐥𝐢𝐠𝐧𝐢𝐧𝐠 𝐘𝐨𝐮𝐫 𝐅𝐚𝐢𝐭𝐡 𝐰𝐢𝐭𝐡 𝐭𝐡𝐞 𝐇𝐞𝐚𝐫𝐭 𝐨𝐟 𝐆𝐨𝐝
• 𝐄𝐦𝐛𝐫𝐚𝐜𝐢𝐧𝐠 𝐚 𝐌𝐢𝐫𝐚𝐜𝐥𝐞: 𝐂𝐨𝐦𝐩𝐚𝐧𝐢𝐨𝐧 𝐉𝐨𝐮𝐫𝐧𝐚𝐥 𝐍𝐨𝐭𝐞𝐛𝐨𝐨𝐤 𝐰𝐢𝐭𝐡 𝐒𝐜𝐫𝐢𝐩𝐭𝐮𝐫𝐞 𝐕𝐞𝐫𝐬𝐞𝐬